I, from being so big X h-core, have managed to get through all my tests done and could possibly be out of the clink tomorrow! My doctor still needs to review all the test together, make sure there isn't anything that he wants to have redone, or that there aren't any additional tests he wants to order, and then I am out of there.
There are still a few thing I have to do as an out-patient, but those can all be done close to me and without much hassle. Once they have those results, the doctors will bundle them all together and send it up to Edmonton so that the whole transplant team can review it. Once they do that there is a mega awesome teleconference event where i will be put on the list and classified as either stage 0, 1 or 2.
I'm glad I will be out, I miss how dark and quiet my room is at night. The food at the hospital isn't exactly top shelf(PS thanks to my awesome sister and brother for getting me actual food when the dinners i was brought sucked), and I'm not getting disturbed every few hours by some one taking my blood pressure. The nurse and staff at the hospital have been super, I have zero complaints about them.
Also I am going to have to find a way to were long sleeves and not die of heat stroke for the next or so, because i have junkie arms really bad. Seriously, there seven extremely visible needle marks on my arms right now. I would make the worst heroin addict
Tuesday, 28 June 2011
Saturday, 25 June 2011
The first week of tests
So the first week of tests has come and gone, and I have to say it was a shit kicking. I'm glad it was done the way it was, they got so much done that I maybe out by the middle of next week. But getting woken up a 6am and not having my feet hit the ground till 3 or 4 O'clock in the afternoon. So on the days I had to not eat for tests i could go for 14-16 hours without eating. So I may have lost about 3 kilos. Nothing to worry about, I had some to spare, but being hungry all day makes getting stuck with needles or someone screwing up that much harder to deal with.
Family and friends have been great for support, and my doctor has been good about letting me out in the evenings. But I do very much miss my own bed, my computer, and my routine.
Something I do want to clarify for everyone is that even though I am in a hospital and am having tons of tests run, and road in an ambulance(it was fun, EMTs are great people) I'm in no worse health than I was a few months ago. Yes my lung are trashed, but me getting worse is not what prompted this stay.
That is most likely why I have had a such a good attitude about this whole thing. It's not like the cancer where we were trying to play catch up and get in front of the disease. everything I am doing now is going to make me better. The recover from the transplant is going to put in a damn big hurt locker, but in the long run I am going have a quality of life i could only dream about now.
Thats all for now folks
Family and friends have been great for support, and my doctor has been good about letting me out in the evenings. But I do very much miss my own bed, my computer, and my routine.
Something I do want to clarify for everyone is that even though I am in a hospital and am having tons of tests run, and road in an ambulance(it was fun, EMTs are great people) I'm in no worse health than I was a few months ago. Yes my lung are trashed, but me getting worse is not what prompted this stay.
That is most likely why I have had a such a good attitude about this whole thing. It's not like the cancer where we were trying to play catch up and get in front of the disease. everything I am doing now is going to make me better. The recover from the transplant is going to put in a damn big hurt locker, but in the long run I am going have a quality of life i could only dream about now.
Thats all for now folks
Monday, 20 June 2011
Play off Beard
So the first day was not bad, hardly any probing, and it is looking like I will be allowed out most evenings. In other news I have started growing a play off beard...this is in addition to my regular beard. I figured this technique of garnering good luck has worked for every hockey team ever EVER, so I will do it too. I will keep growing it until the new lungs are in. And of course if you people out there would like to play along at home feel free to grow a solidarity beard yourself. One person has already started one, and remember your boss can't tell you not to do it because its all for a good cause. Your boss doesn't hate sick people...does he?
Peter B
Peter B
Sunday, 19 June 2011
More information
So here is some more information about what is going on with me right now. Most of you should know by now that I am a two time cancer survivor, but that I didn't come through unscathed. Both my hips had to be replaced, my sight and hearing have decreased, and most significantly my lungs were damaged.
Because of all these issues have to see a couple different specialist, and a few months ago my lung doc brought up the subject of lung transplantation. I was not even aware that a transplant was an option for me, but a few weeks later I had a appointment to see the transplant team.
Tomorrow I begin the one of the first steps, I'm checking into the hospital for a week (maybe two) so that they can run a whole bunch of test to get an over all assessment of my health. They need to rule out any hidden problems or health problems that might bar me from reciving a transplant. So I'm going to get scanned and scoped and poked and generally touched by strangers.
After all that is done the results will go up to Edmonton, a team of doctors will classify me and place me somewhere on the list. Then I go live in E-town for six weeks at "transplant boot camp" to get in fighting shape and learn all i can about my new life after transplantation. Some of this stuff is old news to me, i have done two other transplants (bone marrow) before, some of it is all new.
Thats it for now, depending on whether or not the hospital has internet, or if there is a place to scam wireless near by I might not update till I'm out.
Peter
Because of all these issues have to see a couple different specialist, and a few months ago my lung doc brought up the subject of lung transplantation. I was not even aware that a transplant was an option for me, but a few weeks later I had a appointment to see the transplant team.
Tomorrow I begin the one of the first steps, I'm checking into the hospital for a week (maybe two) so that they can run a whole bunch of test to get an over all assessment of my health. They need to rule out any hidden problems or health problems that might bar me from reciving a transplant. So I'm going to get scanned and scoped and poked and generally touched by strangers.
After all that is done the results will go up to Edmonton, a team of doctors will classify me and place me somewhere on the list. Then I go live in E-town for six weeks at "transplant boot camp" to get in fighting shape and learn all i can about my new life after transplantation. Some of this stuff is old news to me, i have done two other transplants (bone marrow) before, some of it is all new.
Thats it for now, depending on whether or not the hospital has internet, or if there is a place to scam wireless near by I might not update till I'm out.
Peter
First post!
okay this is the first post of my new blog. The main idea behind what I am going to be doing with this is let the people i know what is happening regarding my health and what stage i am at with regards to my lung transplant. I don't talk with all of you on a regular basis so this can be a way for you to keep up with me, ask question, etc. The other purpose is for me to keep a record of what I am feeling and thinking as i go through a very life changing event.
The next post I do will more general information about what my current health is like and what will be happening in the near future.
Peter
PS: this is NOT a spelling and grammar exercise, pointing them is a dick move and you have to be nice to me cause I'm sick
The next post I do will more general information about what my current health is like and what will be happening in the near future.
Peter
PS: this is NOT a spelling and grammar exercise, pointing them is a dick move and you have to be nice to me cause I'm sick
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